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Quality of Life - Pediatric Inventory « Quality of Life « Surveys/Scales « Downloads

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Date postedFebruary 1, 2012
Downloaded892 times
CategoriesQuality of Life, Adolescents, Mental Health, Social, Surveys/Scales, Health Assessment, Personal Traits

Description

Background:

The PedsQL Measurement Model is a modular approach to measuring health-related quality of life in both healthy children and adolescents and in those with acute and chronic health conditions. The survey integrates generic core scales and disease-specific modules.

The PedsQL Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. The PedsQL Measurement Model integrates seamlessly both generic core scales and disease-specific modules into one measurement system.

The 23-item PedsQL Generic Core Scales were designed to measure the core dimensions of health as delineated by the World Health Organization, as well as role (school) functioning. The 4 Multidimensional Scales and 3 Summary Scores are:

Scales
Physical Functioning
(8 items)
Emotional Functioning
(5 items)
Social Functioning
(5 items)
School Functioning
(5 items)

Summary Scores
Total Scale Score
(23 items)
Physical Health Summary Score
(8 items)
Psychosocial Health Summary Score
(15 items)

The PedsQL Generic Core Scales are easy to score. The items of the four Scales (Physical Functioning, Emotional Functioning, Social Functioning, and School Functioning) are grouped together on the actual questionnaire, so it is easy to create Scale Scores.
On the PedsQL Generic Core Scales, for ease of interpretability, items are reversed scored and linearly transformed to a 0-100 scale, so that higher scores indicate better HRQOL (Health-Related Quality of Life).

To reverse score, transform the 0-4 scale items to 0-100 as follows: 0=100, 1=75, 2=50, 3=25, 4=0.

To create Scale Scores, the mean is computed as the sum of the items over the number of items answered (this accounts for missing data). If more than 50% of the items in the scale are missing, the Scale Score should not be computed. Imputing the mean of the completed items in a scale when 50% or more are completed is generally the most unbiased and precise method. To do this, count the number of missing values in the scale (call it nmiss). Next, sum the item scores and divide by the number of items in the scale minus nmiss. Alternatively, use the Compute command in SPSS to compute the MEAN.

To create the Psychosocial Health Summary Score, the mean is computed as the sum of the items over the number of items answered in the Emotional, Social, and School Functioning Scales. The Physical Health Summary Score is the same as the Physical Functioning Scale Score.
To create the Total Scale Score, the mean is computed as the sum of all the items over the number of items answered on all the Scales.

Developers:

James W. Varni, Ph.D

Copyright:

RAND. Contact for Oder: Christelle Berne; Mapi Research Institute; 27, rue de la Villette; 69003 Lyon; France. Email: cberne@mapi.fr

References:
Varni, J.W., Burwinkle, T.M., Berrin, S.J., Sherman, S.A., Artavia, K., Malcarne, V.L., & Chambers, H.G. (in press). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and sensitivity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and Child Neurology.

Varni, J.W., Burwinkle, T.M., & Seid, M. (in press). The PedsQL™ 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research.

Chan, K.S., Mangione-Smith, R., Burwinkle, T.M., Rosen, M., & Varni, J.W. (2005). The PedsQLÔ: Reliability and validity of the Short-Form Generic Core Scales and Asthma Module. Medical Care, 43, 256-265.